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For me, Topomax was the worst. I had no appetite and no taste for food. I lost so much weight that my co-workers made regular comments to me, such as "Kerri, you have to tell me what diet you are on". It annoyed me a lot, but it wasn't their fault. I told them, "It's a simple diet. Just become epileptic, take four different meds and you won't have an appetite either. " Not many people asked about my weight loss after I said that.

I Spilled my soda, my favorite game I should have been asleep HOURS ago, like last year I my father died and my sister, so it's just me, my younger sis, and my mom. When I go bed I won't wake up for days.

< Back These are the types most people think of when they think about seizures. These seizures produce a loss of consciousness and violent muscle contractions. They can last from a few seconds to several minutes. Previous Next

seizure living, seizure information, facts about epilepsy, books to read about epilepsy, seizures, & mental health, epilepsy compassion, seizure surgery personal information & pictures, blogging about relevant issues, no donations needed or email updates Hello About Me My 5 Brain Surgeries Login/Create Account Members File Share Search Blah Blah Blah Blog Post Contact Epilepsy News Epilepsy Facts New Epilepsy Terminology Phases of a Seizure Best Seizure Doctors The Why, What, & How of Seizures Glossary of Medical Terms SUDEP Read My Epilepsy Journey About ECI At Epilepsy Compassion International, we are dedicated to assisting individuals and families affected by epilepsy through education, advocacy, and community engagement. I take pride in sharing my journey, as an epilepsy diagnosis can be a truly transformative experience. While many face hardships, it's essential that we don't allow our trauma to define us. Always remember, you are more than just a condition, disorder, or injury. Join us in creating a world where those impacted by epilepsy feel understood, empowered, and embraced. BECOME A MEMBER NOW! 1. NO DONATIONS OR PURCHASES NEEDED 2. NO UNWANTED EMAILS OR TEXTS 3. GAIN ACCESS TO EPILEPSY INFORMATION FROM SCHOLARLY ARTICLES 4. CONNECT WITH THE COMMUNITY AT YOUR CONVENIENCE BY VISITING THE BLAH BLAH BLOG PAGE. POST A QUESTION OR OFFER HELP BY ANSWERING OTHERS' QUESTIONS. EPILEPSY FACTS YOU SHOULD KNOW "Sign Up to leave comments, ask a question or answer questions from the Blah Blah Blah BLOG community members!!"- Kerri Croake kerri@epilepsycompassion.com 917-385-9775 mobile Join ECI You're now a part of something bigger then yourself. You should be proud & we are honored to have you. Epilepsy Compassion International YOU ARE MORE THAN A DISORDER Teens & Epilepsy Being constantly unwell is challenging, especially when it's invisible to others. Epilepsy is invisible until we have a seizure. Then we are treated differently, ignored, or made fun of by obtuse people. The worst is when people or friends become afraid of being around us. It's hard enough to go through a life-altering experience that makes you feel less than your "old" self. When the people you love confirm it with their actions you want to be transported back in time before epilepsy happened to you. After 30 years & 5 brain surgeries you'd think I would just give up when it becomes too tough, but I won't give epilepsy my life. Fuck that. I was made strong & I will act strong even if I don't feel it. People always remember the bad things, so I advise that you stop caring about other people's feelings so you can concentrate on YOU. 1 Driving & Epilepsy It's tough to feel left out, but it's essential to understand that your independence isn't defined by your limitations—like driving. Remember, these rules are in place for your safety and the safety of everyone around you. Embrace the idea that friends can be your "chauffeurs," supporting you through this phase. If they're not stepping up, it might be time to reconsider who your true friends are. 2 3 How do I know if I have Epilepsy? IF YOU'VE HAD A SEIZURE WITH NO PRIOR HISTORY OF SEIZURES YOU NEED TO SEE YOUR DOCTOR. Wait! There's More My Books Book 1 Quick View My Moment of Impact Book 2 Quick View My Moment of Madness Book 3 Quick View My Moment of Salvation Book 4 Quick View My Moment of Survival NEW Quick View A Day in Kerri's Life: A Children's Book About Epilepsy, Friendship, and Courage Epilepsy Compassion International Don't miss out on our File Share page! Dive in to download vital facts about epilepsy and equip yourself with knowledge that truly makes a difference. Stay informed and empowered! GO THERE NOW!

epilepsy brain op pics and story. I've had five epilepsy surgeries and still need meds. Craniotomy 1-3 and Cranioplasty 1-2 My family was there every day for a month. My mom slept in the hospital almost every night until she was kicked out by my daddy. My sisters would visit me after work & say, "Move over, Ker. I'm so tired." My Daddy taped my glasses to the pressure bandage My sisters and me My pressure bandage with EEG cables coming out a hole in the back. The 1st surgery, eight hours long, was the implantation of the leads on & inside the brain. They removed part of the skull & kept it frozen until the last surgery. They replaced it and used titanium screws to keep it in place Finally at home but still have my sutures and staples. I think this was after the fourth surgery. You meet great friends, too! EEG leads connected to my brain My staples in all their glory.