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seizure living, seizure information, facts about epilepsy, books to read about epilepsy, seizures, & mental health, epilepsy compassion, seizure surgery personal information & pictures, blogging about relevant issues, no donations needed or email updates Hello About Me My 5 Brain Surgeries Login/Create Account Members File Share Search Blah Blah Blah Blog Post Contact Epilepsy News Epilepsy Facts New Epilepsy Terminology Phases of a Seizure Best Seizure Doctors The Why, What, & How of Seizures Glossary of Medical Terms SUDEP Read My Epilepsy Journey About ECI At Epilepsy Compassion International, we are dedicated to assisting individuals and families affected by epilepsy through education, advocacy, and community engagement. I take pride in sharing my journey, as an epilepsy diagnosis can be a truly transformative experience. While many face hardships, it's essential that we don't allow our trauma to define us. Always remember, you are more than just a condition, disorder, or injury. Join us in creating a world where those impacted by epilepsy feel understood, empowered, and embraced. BECOME A MEMBER NOW! 1. NO DONATIONS OR PURCHASES NEEDED 2. NO UNWANTED EMAILS OR TEXTS 3. GAIN ACCESS TO EPILEPSY INFORMATION FROM SCHOLARLY ARTICLES 4. CONNECT WITH THE COMMUNITY AT YOUR CONVENIENCE BY VISITING THE BLAH BLAH BLOG PAGE. POST A QUESTION OR OFFER HELP BY ANSWERING OTHERS' QUESTIONS. EPILEPSY FACTS YOU SHOULD KNOW "Sign Up to leave comments, ask a question or answer questions from the Blah Blah Blah BLOG community members!!"- Kerri Croake kerri@epilepsycompassion.com 917-385-9775 mobile Join ECI You're now a part of something bigger then yourself. You should be proud & we are honored to have you. Epilepsy Compassion International YOU ARE MORE THAN A DISORDER Teens & Epilepsy Being constantly unwell is challenging, especially when it's invisible to others. Epilepsy is invisible until we have a seizure. Then we are treated differently, ignored, or made fun of by obtuse people. The worst is when people or friends become afraid of being around us. It's hard enough to go through a life-altering experience that makes you feel less than your "old" self. When the people you love confirm it with their actions you want to be transported back in time before epilepsy happened to you. After 30 years & 5 brain surgeries you'd think I would just give up when it becomes too tough, but I won't give epilepsy my life. Fuck that. I was made strong & I will act strong even if I don't feel it. People always remember the bad things, so I advise that you stop caring about other people's feelings so you can concentrate on YOU. 1 Driving & Epilepsy It's tough to feel left out, but it's essential to understand that your independence isn't defined by your limitations—like driving. Remember, these rules are in place for your safety and the safety of everyone around you. Embrace the idea that friends can be your "chauffeurs," supporting you through this phase. If they're not stepping up, it might be time to reconsider who your true friends are. 2 3 How do I know if I have Epilepsy? IF YOU'VE HAD A SEIZURE WITH NO PRIOR HISTORY OF SEIZURES YOU NEED TO SEE YOUR DOCTOR. Wait! There's More books Book 1 Brzi pregled My Moment of Impact Book 2 Brzi pregled My Moment of Madness Book 3 Brzi pregled My Moment of Salvation Book 4 Brzi pregled My Moment of Survival NEW Brzi pregled A Day in Kerri's Life: A Children's Book About Epilepsy, Friendship, and Courage Epilepsy Compassion International Don't miss out on our File Share page! Dive in to download vital facts about epilepsy and equip yourself with knowledge that truly makes a difference. Stay informed and empowered! GO THERE NOW!

epilepsy brain op pics and story. I've had five epilepsy surgeries and still need meds. Craniotomy 1-3 and Cranioplasty 1-2 My family was there every day for a month. My mom slept in the hospital almost every night until she was kicked out by my daddy. My sisters would visit me after work & say, "Move over, Ker. I'm so tired." My Daddy taped my glasses to the pressure bandage My sisters and me My pressure bandage with EEG cables coming out a hole in the back. The 1st surgery, eight hours long, was the implantation of the leads on & inside the brain. They removed part of the skull & kept it frozen until the last surgery. They replaced it and used titanium screws to keep it in place Finally at home but still have my sutures and staples. I think this was after the fourth surgery. You meet great friends, too! EEG leads connected to my brain My staples in all their glory.

I've had epilepsy for thirty years, had five brain surgeries, and still take medication. I'm no different than anyone else I just want to inform people that it could be worse. MY FUN TIMES WITH EPILEPSY Tap into Your Strength After Trauma. There isn't anything special about me. I'm one of three million Americans that have epilepsy. I was diagnosed in college and that wasn't fun. I went to the wrong type of doctor, a neurologist and not an epileptologist, who put me on two different medications. I finally found the right doctors. I learned a lot about the brain and the Central Nervous System. I was a Bio major, so I had an interest in how the body worked; however, I never imagined that I would be "the patient". But I am and always will be, despite being told by my first neurologist that I would grow out of it! I thought he was the one with a neurological disorder after he said that to me. I was skeptical of his prognosis and was correct. I didn't want to be, but I just knew. I've spoken with dozens of people with epilepsy or their family members. What I hear the most is, "the doctor said he/she/they will grow out of it." After graduation I eventually worked as an IT systems engineer in NYC. It was a stressful job, but I never used to get stressed out. It was the little things that affected me- loud, crowded areas give me migraines, not remembering names of people, wearing my sunglasses to the movies and TV shows I had previously seen but forgot I had watched. When I don't remember I tell myself "Everything is new and exciting." My new hobby is writing about my epilepsy journey. There wasn't anything on-line about epilepsy and I feel like it's my destiny to give back to the people like me who thought they were alone living with epilepsy. Then I had brain surgery. Most patients have a two-stage craniotomy, and they have a reduction in seizures or never have another seizure. I joke that I am 'Murphy's Law' because I needed a three-stage craniotomy. A year after that I needed a cranioplasty. My skull never fused back the way it was supposed to, so I needed a partial skull replacement. After four years of migraines my neurosurgeon took skull x-rays. He noticed that I had a screw loose, but when he opened up my head it wasn't a screw that was my problem. The methyl methacrylate, a polymer that is often used to hold the titanium skull in place, had rippled. They "sanded" my plastic, titanium skull to smooth out the ridges and I went home the same day. There are things that will trigger my seizures, and I avoid them. It's not the worst thing in the world to have epilepsy. Despite missing part of the right side of my temporal lobe, hippocampus and amygdala I live a life that I can be happy and proud of not because I'm a hero. It's because I choose to be happy. We all have to make that choice every day. THAT'S MY STORY AND I'M STICKING TO IT!